Tuesday, December 6, 2011

Quick Update

Hemoglobin level dropped to 10.6.  Hemey keeping me on 4,000 units of Procrit weekly.

My white blood cell count is still low.  I'm a little confused as to why lupus patients usually have low white blood cell counts when their immune system is overactive.  This seems counterintuitive to me.  I'll have to ask Hemey/Rheumy at my next appointment.

- a little lupie -

Friday, December 2, 2011

Belated Rheumy Update

I went to the Rheumy almost a week ago but didn't update, which can be taken as a good sign.  It was a pretty uneventful appointment and I don't have to go back for another 8 weeks (yippee!).  I must say, though, that after being to several other doctors offices, I really like my Rheumy.  He, himself, is good -- he listens to me, explains things and offers me options, and makes sure all of my questions are answered.  The other things that I really appreciate are his staff and his office.  His front office is organized, responsive, and friendly.  They know who I am when I walk in, and I never have to wait very long.  The office itself is tidy and CLEAN.  I don't feel gross and like I don't want to touch anything or sit on the chairs like I do when I visit other doctor offices.  These may seem like little things, but they make a world of a difference when having to do an otherwise unpleasant thing like going to the doctor.

My laboratory results still showed low blood counts -- my hemoglobin is still right at 10.9, which is lower than "normal", but the highest it can be for me to keep getting my Procrit shots.  My white blood cell count is also still low.

My fatigue has been lessening thanks to the Procrit, but now I have to be careful not to overdo myself.  I'm so excited to be able to have the energy to do things after coming home from work and stay up past 7:00 that I do...but then I don't get my 9 hours of sleep and feel crashed the next day.  Also, with the holidays, things are much busier again.  This is around the time last year that I started showing symptoms before my diagnosis, so I'll need to watch out.  Stress is one of the triggers for lupus.  I think I've been pushing myself a little too much this past week, and it is taking a toll on my body.  Time to take it easy for a while...

- a little lupie -